Patient and Public Involvement Working Group
The DeNDRoN Coordinating Centre has established a working party responsible for overseeing the development and monitoring of the progress of patient and public involvement in the Dementias & Neurodegenerative Diseases Research Network. The Working Group comprises of experts who have experience and expertise in involving patients and carers in research and service development; people affected by these conditions with some experience of active involvement in research; representatives of dementia, Parkinson’s, MND and Huntington’s medical research & support charities; and representatives of the DeNDRoN Coordinating Centre.
The remit of the Patient and Public Involvement Working Group is:
- To ensure that the interests of patients, carers and the public are fully taken into account within the work of the DeNDRoN
- To operate at a strategic level and assist with the development of overall DeNDRoN policy in respect of improving clinical research for the benefit of people affected by these conditions
- To review and amend as necessary the ‘aims’, ‘principles’ and ‘objectives’ of our PPI programme
- To develop a plan for how the DeNDRoN Coordinating Centre should undertake to develop our PPI programme in order to deliver the ‘aims’, ‘principles’ and ‘objectives’ as agreed by the Working Group
The Working Group meets three times a year.
Terry McGrath
PPI Coordinator
Dementias & Neurodegenerative Diseases Research Network (DeNDRoN)
Box 81
National Hospital for Neurology and Neurosurgery
Queen Square
LONDON
WC1N 3BG
Tel: 020 3206 4960