Patient and Public Involvement: What do we mean by it?
By ‘Patient and Public Involvement’ (PPI) we mean involving all members of the public affected by the diseases represented by the DeNDRoN. This includes people with these diseases, their carers, family and friends, and members of the public who have an interest in the disease. A ‘carer’ is a relative, friend, neighbour or partner who, without payment, provides (or intends to provide, or used to provide) care to another person on a regular basis. Throughout this website the term 'PPI' will be used to describe the involvement of this broad range of people. The term ‘people affected by these conditions’ is used to refer to people affected by the disease areas covered by the DeNDRoN (particularly the dementias, and Parkinson’s, Huntington’s and motor neurone diseases). ‘Lay members’ is used to refer to people affected by these conditions who are members of a DeNDRoN committee acting in a non-professional capacity