Public and Patient Involvement

For DeNDRoN, patient and public involvement (PPI) is a mainstream ingredient of all our work.

We are committed to collaborating systematically with patients, carers, ex-carers, and medical charities, patient representative groups and voluntary organisations. The views and perspectives of people affected by the dementias and neurodegenerative diseases should inform DeNDRoN’s plans and activities at all stages of the clinical research process, both locally and nationally.

See the Section Links down the left-hand side of this page for full information about PPI within DeNDRoN.

PPI and the Dementia Themed Call

A very important patient and public involvement focus at the moment is the National Institute for Health Research themed call for applied health research on dementia. DeNDRoN is involving patients and carers within the process of developing research study proposals for this Dementia Themed Call.

For more information PPI in the NIHR Dementia Themed Call, please follow this link: Patient and Public Involvement in the NIHR Dementia Themed Call.

Becoming actively involved with DeNDRoN

We have a wide range of opportunities for active involvement of patients, carers, ex-carers and other members of the public in the work of the network. Some of these activities, such as involvement in the development of new studies, are coordinated nationally. Some, such as involvement in the running of one of our Local Research Networks, are coordinated regionally.

DeNDRoN Needs You!

We are keen to encourage more people to become actively involved in the work of the network. To help to ensure DeNDRoN’s commitment to PPI really does have a big impact in DeNDRoN, there’s a national PPI Coordinator – Terry McGrath.

Please contact our Patient & Public Involvement Coordinator, Terry McGrath, at the DeNDRoN Coordinating Centre as below if you want to be involved (or just have a question) or simply email him on: terry.mcgrath@dendron.org.uk

Register your interest here via this form, which you can download and send via e-mail or post