Co-ordinating Patient and Public Involvement
The co-ordination of patient and public involvement presents a particular challenge for DeNDRoN. There are a number of issues which need to be addressed to enable people affected by these dieases to become more actively involved in research. Although many of these issues cut across all the diseases incorporated into the Dementias & Neurodegenerative Diseases Research Network, there are also issues specific to each disease. We are in the process of implimenting our strategy for coordinating PPI across the network. This strategy combines tackling cross cutting issues with providing disease-specific support where appropriate. We are currently developing this strategy in conjunction with our non-statutory disease association partners, and with the NIHR and Department of Health.