Co-ordinating Patient and Public Involvement
The co-ordination of patient and public involvement presents a particular challenge for DeNDRoN. There are a number of issues which need to be addressed to enable people affected by these dieases to become more actively involved in research. Although many of these issues cut across all the diseases incorporated into the Dementias & Neurodegenerative Diseases Research Network, there are also issues specific to each disease. We are in the process of developing our strategy for coordinating PPI across the network. This strategy will combine tackling cross cutting issues with providing disease-specific support where appropriate. We are currently developing this strategy in conjunction with our non-statutory disease association partners, and with the UKCRN and Department of Health.
The DeNDRoN Co-ordinating Centre has appointed an officer to act as the coordinator of the patient and public involvement programme. The post holder is responsible for using the road map to develop and deliver our patient and public involvement programme.