Patient & Public Involvement: What do we mean by it?
Introdution:
Introdution:
By ‘Patient and Public Involvement’ (PPI) we mean involving all members of the public affected by the diseases
represented by the DeNDRoN.This
includes people with these diseases, their carers, family and friends, and
members of the public who have an interest in the disease. A ‘carer’ is a relative, friend, neighbour or partner
who, without payment, provides (or intends to provide, or used to provide) care
to another person on a regular basis. Throughout this website the term 'PPI' will be used to describe the involvement of
this broad range of people.The term
‘people affected by these conditions’ is used to refer to people affected by
the disease areas covered by the DeNDRoN (particularly the dementias, and Parkinson’s,
Huntington’s and motor neurone diseases).‘Lay
members’ is used to refer to people affected by these conditions who are members
of a DeNDRoN committee acting in a non-professional capacity.
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