DeNDRoN

Section title:

Patient & Public Involvement principles:

Introdution:

The views and perspectives of people affected by these conditions should inform the DeNDRoN strategy
There should be an open and transparent system of active patient and public involvement in all DeNDRoN activities
Involvement should be at all stages and all levels of the research process
The role of people affected by these conditions within the different components of DeNDRoN should be clearly defined
There should be active involvement in all key national and local DeNDRoN committees. There should be two lay members of these committees
The timing and venues of committee meetings should take into account the needs and preferences of lay members
Training, mentoring and support should be provided for people affected by these conditions and researchers.
Information about DeNDRoN should be accessible to patients, carers and the public
Duplication and fragmentation with other patient and carer involvement initiatives, eg, UKCRN or other agencies should be avoided
The impact of the programme should be evaluated

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