The
coordination of patient and public involvement presents a particular
challenge for DeNDRoN. There are a number of issues which
need to be addressed to enable people affected by these dieases
to become more actively involved in research. Although many of these
issues cut across all the diseases incorporated into the Dementias &
Neurodegenerative Diseases Research Network, there are also issues
specific to each disease. We are in the process of developing our
strategy for coordinating PPI across the network. This strategy will
combine tackling cross cutting issues with providing disease-specific
support where appropriate. We are currently developing this strategy
in conjunction with our non-statutory disease association partners,
and with the UKCRN and Department of Health.
The
DeNDRoN Coordinating Centre has appointed an officer to act as the
coordinator of the patient and public involvement programme. The post
holder will be responsible for using the road map to develop and
deliver our patient and public involvement programme.
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