New Motor Neurone Disease (MND) patient record of interest in research launched
Members of the DeNDRoN MND Clinical Studies Group in collaboration with the Motor Neurone Disease Association (MNDA) have been working together to formulate a method of bringing together researchers and volunteer participants to facilitate both parties in achieving their objectives. A system has been developed that will allow patients to record their interest in taking part in research. This list allows the MNDA to identify suitable participants and provide them with information about approved researcher’s studies.
Patients with a diagnosis of any form of MND are eligible to join this and are asked to provide details which will aid researchers to carry out a basic search to review eligibility criteria for research studies.
This record will help researchers to recruit people with MND across England, Wales and Northern Ireland, particularly when they have complex inclusion criteria and there are not enough suitable patient numbers from the research project’s local area.
To find out more information about this please visit: http://tinyurl.com/ycdngww
Contacts
NIHR DeNDRoN enquiries
news@dendron.org.uk